This project has received funding from the European Union’s 7th Framework Programme for research, technological development and demonstration under grant agreement no 611709
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> Access to trustable practical information for cancer patients
Type proposer: Patient
Description
There is a demand by cancer patients of practical, trustable information regarding the disease and its management. For example, general treatment instructions (including dietary issues) or
resources like timetable and location of local cancer centres and departments, available support from local social services and patient associations, information and education about clinical
trials, etc. This is especially needed at the first stages of treatment, right after diagnostics.
These resources would complement the personalized one provided by the oncologist, as they answer general questions common to most of them. The objective is not only to empower cancer patients and
relatives with information, but also support doctors to have more agile visits or even reduce them, improve the patient-doctor relationship and deliver more value to patients.
One possibility would be that oncology departments themselves maintain a web portal and its content, tailored to the local information needs. It could be presented as an easy to follow
´information roadmap´ with a Frequently Asked Questions (FAQ) section curated by the oncology department.
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